Neuromuscular FAQs

Where can I find more information?

Below are some links which you may find useful: 

 

Conditions

Videos for people with muscle-wasting conditions

Muscular Dystrophy UK has been working with specialist health professionals and people with muscle-wasting conditions to create films.

The films all discuss what it is like to live with a muscle-wasting condition, and explain the importance of accessing specialist healthcare to maintain muscle strength and quality of life. The short films also describe the wide range of support that is available from Muscular Dystrophy UK to support and advise people with muscle-wasting conditions.

 

Fact Sheets

Becker-MD

Bethlem-myopathy

Central-core-disease

Charcot-Marie-Tooth

Congenital-muscular-dystrophies

Congenital-myasthenic-syndromes

Congenital-myotonic-dystrophy

Duchenne-the-older-child

Duchenne-MD

Emery-Dreifuss-MD

FSH

Inclusion-body-myositis (IBM)

List-of-medical-conditions

LGMD-general

Manifesting-carriers

McArdles-disease

MDC1A

Metabolic-conditions

Minicore-(multicore)-myopathy

Mitochondrial-myopathies

Mitochondrial-myopathies-(1)

Myasthenia-Gravis

Myopathy

Myotonias

Myotonic-dystrophy-Facts

Myotonic-Dystrophy

Myotubular-(centronuclear)-myopathy

Nemaline-(rod)-myopathies-(1)

OPMD-(1)

Periodic-paralyses

Polymiositis,-dermatomyositis,-sarcoid-myopathy

Rigid-spine-syndrome

Spinal-Muscular-Atrophy (SMA)

Ulrich-congenital-MD

 

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Management

Best Practice Specialist Healthcare for people Affected by Muscle-Wasting Conditions Video

Anaesthetics

Anaesthetics - Neuromuscular and mitochondrial disorders: what is relevant to the anaesthesiologist?

Behaviour-issues

Dehydration

Lets-talk-about-feelings

Gastronomy

Heart-check

Making-breathing-easier

Muscle-biopsies

Nutrition-and-feeding

Pressure-ulcers

Questions-about-ventilation

Spinal-surgeries

Steroids-and-DMD

Surgical-correction-of-scoliosis

 

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Links to websites

Action Duchenne

http://www.actionduchenne.org/

 

Association for Glycogen Storage Disease (UK)

http://www.agsd.org.uk/

 

CMT UK

http://cmt.org.uk/

Hope House

http://www.hopehouse.org.uk/home.html

 

Muscular Dystrophy UK

http://www.muscular-dystrophy.org/

 

Myotonic Dystrophy Support Group

http://www.myotonicdystrophysupportgroup.org/

 

Neuromuscular Centre Midlands

http://nmc-midlands.co.uk/

 

The Neuromuscular Centre, Winsford

http://www.nmcentre.com/

 

Spinal Muscular Atrophy Support UK (Formerly The Jennifer Trust)

http://www.smasupportuk.org.uk/

 

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Appointments

For information about appointments please call:

Rachel Steel, Pathway Co-ordinator

Tel: 01691 404486

 

Psychology Appointments

Dr Yvette Easthope-Mowatt, Clinical Psychologist 

Tel: 01691 404041

 

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